We Knew She Was Different

The first time we laid eyes on her, we knew she was special. Katerina had a way of lighting up a room with her huge smile and her pure joy. And…when she met her daddy for the first time…oh the joy, such incredible joy. We didn’t know how Katerina would react to Joel, because many children living in orphanages haven’t had a lot of contact with males (most caregivers are women), but Katerina knew this man was HER daddy, and she loved him immensely, and the feeling was mutual.

Katerina has always been such a special little girl, in many respects. She’s the only girl out of the four we’ve adopted. That, in and of itself, makes her very special. She holds her own with the boys, but she loves to be the girl God has created her to be. She plays with dolls, likes to have her fingernails painted, and loves to wear pretty dresses.

Soon after our adoption of Katerina (and her brothers) was complete, we had them all evaluated at an international adoption clinic and by their local pediatrician. It was clear there was something else going on with Katerina. We learned early on there was a developmental delay (not uncommon coming from orphanage life). But, we were referred to the Fullerton Genetic Center to have her evaluated for Fetal Alcohol Syndrome (FAS). Children coming from the part of the world where these children came from are often exposed to alcohol in the womb, and FAS or any of the Fetal Alcohol Spectrum Disorders (FASD) are very strong possibilities for these children.

Upon her genetic testing (which ruled out some other possibilities) and a battery of testing, Katerina was confirmed with FAS. Our hearts broke for our sweet daughter. It wasn’t her fault, but she’ll have to deal with the effects of a choice by another for the rest of her life (as will her new family).

This past December, Katerina was evaluated yet again, and we learned she also has Autism. That somewhat came as a surprise, because many symptoms of FAS are in direct contradiction to Autism Spectrum Disorders (ASD). However, she scored high enough in the other categories that her diagnosis was clear.

Joel and I knew we were in for a lifetime of parenting this little girl who would grow to be a young lady. What would her future look like? Would she be able to learn enough to live independently? Would she ever be able to work a job? So many questions…

This past Friday, I faced the next challenge alone for the first time. Katerina just went through re-evaluation for her IEP (Individualized Education Plan). She was given a large battery of in-depth tests. The results of the all the testing…our baby girl is mentally challenged. Her IQ is very low, and she is now considered “moderately intellectually delayed”. I think we knew it deep down, but I heard it for the first time, and my heart broke again. I had to grieve for my daughter all over again. But this time, I didn’t have her daddy to grieve and share this news with. I truly felt and thought to myself, “How much more Lord? How much more weight can my shoulders take?” I know I won’t feel this way forever, but for now…I feel the darkness is getting heavier and the pit is getting deeper. I’m still praying and waiting for breakthrough and a glimpse of the light breaking through the tunnel.

But, God has great plans for Miss K! I know He does. She is full of compassion and love and seems to know how to comfort people in pain in ways others don’t. I had a bit of a meltdown a week ago that unfortunately happened in front of the kids. The boys kept asking if I was okay and wanted to help with words. But my sweet girl…she walked up to me and started rubbing my back…she didn’t say a word. She just rubbed my back! God used her mightily in that moment to comfort her hurting mama.

He has great plans for my girl! No doubt in my mind. I just want to make sure I listen to His still, small voice to know what role I play in His plans for her. Without Joel to help me make decisions, I’m trusting God to fill the role of “husband to the widow” He’s promised and guide me through some of the hard decisions I might have to make decades from now or even in the next few weeks.

He won’t let me down. His plan is always perfect and always better.

I’ve been working with Katerina on learning some things about herself that I want to make sure she never forgets. She finally knows them, and will repeat them to me when I ask her to tell me her “I am’s”…and, she’ll say…

I am beautiful.

I am special.

I am smart.

I am loved.

Yes you are my precious! You are so, so loved!